Online Privacy Policy for not dead yet uk

Privacy Policy

Last updated: April 2026 | Version 2.0

This policy explains what personal data Not Dead Yet UK collects, why we collect it, how we use it, and your rights under UK data protection law.

1.Who we are

Not Dead Yet UK is a disability-led campaign organisation opposing assisted suicide and euthanasia in the UK. We are a company limited by guarantee. We are the Data Controller for the personal information you share with us. That means we decide how and why your data is collected and used, and we are responsible for keeping it safe.

If you have any questions about this policy, please contact us:

Email: hello@notdeadyetuk.org
Website: www.notdeadyetuk.org

2.What information we collect, and how

We collect personal information in three main ways.

2a.When you visit our website

Our website automatically collects technical data: IP addresses, browser type, internet service provider, the pages you visit, and the date and time of your visit. This is standard practice for all websites. It is not linked to anything that identifies you personally.

2b.When you sign up for our newsletter

If you choose to receive our newsletter, we collect your name and email address. You may also choose to provide a postal address or phone number, but these are optional.

We use MailChimp to manage our mailing list and send our newsletter. Every email includes an unsubscribe link so you can opt out at any time.

2c.When you complete our media contacts survey

We ask people to register as potential media contacts — people willing to be interviewed or quoted on disability-related issues. We collect this via a Google Form.

This may include your name, contact details, and information about your disability, health, or personal experiences. Information about disability or health is classified as special category data under UK law, and we handle it with particular care.

By completing and submitting the form, you are giving us your explicit consent to hold and use this information as described in this policy.

2d.When you email or communicate with us using other channels

If you contact us, we will keep your communications and may make notes and enter into wider correspondence as a result.

3.How we use your information

We use your personal data only for the following purposes:

To send our newsletter and campaign updates, where you have subscribed.
To manage our supporter and contact lists.
To identify and match potential media contacts with journalists making relevant enquiries, where you have opted in.
To respond to enquiries.
To understand how people use our website, and to keep it running properly.

4.Our lawful basis for processing your data

UK data protection law requires us to have a lawful basis for each use of personal information. Here is what applies:

Website data — legitimate interests (operating a functional, secure website).
Newsletter subscribers — consent (you chose to sign up).
Media contacts — explicit consent (you completed and submitted the survey form).

Where we process special category data (information about your disability or health), we rely on your explicit consent, as required by UK GDPR Article 9.

5.How we share your information

Email and survey service providers

We use trusted third-party services to manage communications and collect survey data. These services process data on our behalf:

MailChimp — manages our newsletter mailing list. See MailChimp's privacy policy at mailchimp.com/legal/privacy.
Google — our media contacts survey is hosted on Google Forms. See Google's privacy policy at policies.google.com/privacy.

Journalists and media organisations

If you have registered as a media contact, we may share relevant details — such as your name, contact information, and relevant experience — with journalists or media organisations where we believe you may be a suitable contributor.

We will only do this when we consider the request genuine and appropriate. Where possible, we will let you know once we have done this, so you can expect to be contacted.

Please note: once your information has been shared with a journalist or media organisation, they become an independent data controller. We recommend contacting them directly if you wish to request deletion of any data they hold.

We do not sell your data

We do not sell your personal data, and we do not share it with any third party for marketing, commercial, or any other purpose not described in this policy.

Legal requirements

We may disclose your information if required by law or by a valid request from a public authority.

6.International transfers

Some of our service providers — including MailChimp and Google — may process data outside the UK. Where this happens, we take reasonable steps to ensure that appropriate safeguards are in place, such as standard contractual clauses approved by the UK Information Commissioner's Office. This means your data receives the same level of protection wherever it is processed.

7.How long do we keep your data

We will not keep your data for longer than is necessary for the purposes set out in this policy.

Media contact data — for as long as you remain registered. We review this list at least once a year and remove records that are no longer needed or where consent has been withdrawn.
For all other data, including that received via email, where reasonable and practicable, we will conduct an annual review and delete it six years after receipt.

8.Data security

We take appropriate steps to protect your personal data from unauthorised access, loss, or misuse. This includes secure storage, restricted access to databases containing personal information, and the use of reputable third-party service providers with their own robust security practices.

While we do our best to protect your data, no method of internet transmission is completely secure. If you have concerns about the security of your information, please contact us.

9.Your rights

Under UK data protection law, you have the right to:

Access the personal information we hold about you.
Ask us to correct any inaccurate information.
Ask us to delete your information.
Withdraw your consent at any time (this does not affect the lawfulness of any processing carried out before withdrawal).
Object to us processing your data in certain circumstances.
Ask us to restrict how we use your data.
Request a portable copy of your data.

To exercise any of these rights, email us at hello@notdeadyetuk.org. We will respond within one month.

If you are unhappy with how we have handled your personal data, you have the right to complain to the Information Commissioner's Office (ICO): ico.org.uk | Helpline: 0303 123 1113

10.Cookies

Our website uses cookies — small files stored on your device — to help it function and to understand how it is being used. The information collected is not linked to anything that identifies you personally.

You can disable cookies through your browser settings. For more information:

ico.org.uk/your-data-matters/online/cookies/

11.Children

Not Dead Yet UK is a campaign organisation whose work is intended for adults. Our website is not directed at children, and we do not knowingly collect personal information from anyone under the age of 18. If you believe a child has provided us with personal information, please contact us at hello@notdeadyetuk.org, and we will remove it as quickly as possible.

12.Changes to this policy

We may update this policy from time to time. When we do, we will update the date at the top of this page. The current version will always be available at www.notdeadyetuk.org.

13.Questions?

If you have any questions about this privacy policy or how we handle your data, please contact us at hello@notdeadyetuk.org.